Showing posts with label brain tumor. Show all posts
Showing posts with label brain tumor. Show all posts

Monday, March 23, 2015

Inspiring Teenager Smiles Through Her Challenges ~ The Story of Ellie


In December of this last year we received an email from Erin, who is the mother of a 17 year old daughter named Ellie. Ellie was diagnosed with a rare brain tumor when she was younger and has had many complications. In the last year alone, she has endured 13 brain surgeries. She also had surgery to her back due to a mass which left her with a paralyzed leg. She has spent far too many days in the hospital. Throughout all of this, her mother explained that Ellie has always kept a positive attitude and can mostly be found with a big, beautiful smile on her face.

Ellie with her mother

The reason Erin was writing to us was because Ellie had found our website and had been saving up to purchase one of our hospital gowns. Erin hoped that we might make her a part of our "Feel Better Campaign" as she was not yet able to purchase one of our hospital gowns, and she knew this would brighten her daughter's time in the hospital. At the time of her email to us, Ellie was hospitalized and about to undergo more surgery.

We couldn't think of a better person to receive one of our "Feel Better" hospital gowns to, so it was an easy decision for us. We sent her our "Annie" designer hospital gown and a few days later we received another email from Ellie's mother that made us both cry. The email contained step by step pictures of Ellie opening the hospital gown that we sent to her. Looking at the pictures made us feel like we were right there with her as she was opening up our gift...... and it was powerful! You can see for yourself in this short Flipagram video:



We have always known our hospital gowns can make a big difference in the life of anyone that has to spend time in the hospital and Ellie confirmed this, once again, for us. She is yet another reminder of why we started this business and why we continue to move forward with Annie & Isabel.

Ellie in her "Annie" hospital gown

After Ellie received her "Annie" hospital gown she wrote us a very nice thank you note and we have included some of that here so you can see what a sweet, thoughtful person she is:

"Most teenagers are worried about how perfect their hair and make-up look, or which party they will attend over the weekend. For me, it's a little different. I just want my hair to grow back completely so I can do different things to it. Forget weekend parties, I just pray to stay out of the hospital for the weekend. You see, in the last year or so I've had over 13 brain surgeries, 55+ spinal taps, at least 15 hospital admissions, countless nights in the PICU, and several ER visits & ambulance rides. I've been diagnosed with multiple serious chronic illnesses throughout the last few years. As a teenager it's been hard spending more time in the hospital then at home. Nurses and doctors are more of my friends than people my own age. But it's also taught me so much. I can't wait for the day when I'm able to attend college and follow my dream of becoming a pediatric oncology nurse. My passion is helping people and I love volunteering in any way possible when my health allows me. I frequently have surgeries or am in the hospital for extended stays. I try personalizing my room and bed up a bit, but to have a gown of my own just means so much! Anna & Selena, thank you SO, SO much for choosing me as your feel better campaign recipient. I truly an so honored, and grateful to be part of something so amazing. I can't thank you enough for the smiles and the happy tears you have brought to me at such a hard time. You are both wonderful people with amazing personalities and I just really can't put into words how much all of this means to me!!! Thank you, truly thank you!! ~ Ellie" 

We gave Ellie a small gift, but the truth is, she has given us a much greater gift. She has shown us how to stay positive in the face of so many obstacles, to live life to the fullest, and to always dream big. We are the ones honored to have Ellie as a "Feel Better Campaign" recipient and we can't thank Ellie and her mother enough for reaching out to us. Ellie's fighting spirit, huge heart, and positive attitude have touched us deeply.

Now we need YOUR help! Ellie has recently been re-admitted to the hospital and could use some good thoughts and prayers.



We would love if you could write some words of encouragement on our Facebook post as Ellie follows along. Ellie is always one to smile, even when she is feeling down, but let's help make that smile much bigger by letting her know there are people thinking about her! It just takes two easy steps:

1. "LIKE" our Facebook post because we feel like each LIKE is the same as giving sweet Ellie a nice big hug!

2. COMMENT on our Facebook post so she can read each message and feel the love and support surrounding her.

You all have always pulled through for our Annie & Isabel warriors so I can't wait to see us all do it again and imagine Ellie smiling with each message! Thank you from the bottom of our hearts (and Ellie's too).

Sunday, September 9, 2012

THANK YOU ~ The Magic of Facebook


We just wanted to take a moment to say THANK YOU....to our Facebook fans, Twitter followers, friends and customers.  You truly are the BEST fans and you motivate us to keep doing what we do every day. 

This last week we posted the story of Jen Roper, a young wife and mom of five beautiful children, who was undergoing surgery to remove a cancerous brain tumor.  We asked you to help us by sending her good thoughts and prayers and "liking" and "sharing" our Facebook post to rally even more thoughts, prayers, and loving comments from all over the country via Facebook.   When we post things like this we always keep our fingers crossed because we know in order for a post to have a chance of going "viral" our core Facebook fans must "like" and "share" it and  BOY DID YOU EVER!!!!  Here is the current status of this post:



The "likes" and comments keep coming in!!!!  Go to our FACEBOOK page now and you will see that there will be even more "likes" and comments.  In addition...this facebook post was shared by 129 people which also continues to grow.  The blog post we did about Jen has had thousands of views by people in over 10 countries!

This makes us so happy because anyone who has gone through a difficult time knows that having a tremendous amount of support, even from strangers, makes a big difference.  Jen has already expressed thanks for your support and as she recovers from this surgery and gears up for chemotherapy and radiation, to get rid of the small amount of her brain tumor that is left, we would love if you keep the thoughts and prayers coming her way.

THANK YOU, THANK YOU, THANK YOU.  You have helped make a family feel loved and supported.....and that means a lot:-)  You can follow Jen's journey via her blog - The Roper's.



 

Wednesday, September 5, 2012

Mother of Five Undergoes Brain Surgery Today - Please Share & Help Us Surround Her With Good Thoughts

Today, on this early September morning, we need your help.

Meet Jen Roper. 

Gorgeous, right?!!!!

Mother of FIVE…four boys and one princess!

Wife.

Daughter.

Sister.

Friend.

and as of this afternoon… 

Jen will be a brain tumor survivor. 

photo courtesy of Maggie Holmes Design

Here is an excerpt from her blog  The Roper's  from August 13th and a little background that brought her to surgery today - 

"A tumor on my brain?

I immediately began to cry.  The lady doing my EEG began to cry.  Matt and the Neurologist barely held it together.  The questions began to flow....

What do you mean a tumor?

Do you mean cancer?

"We believe the tumor to be malignant."  

THIS could not be happening to me.  I am 33 years old.  I have 5 babies.  I run.  I exercise.  I eat right. I lost my mom when I was 16.  I do not deserve anymore big trials, my worst fear is to leave my babies behind.

MY WORST FEAR IS TO LEAVE MY BABIES BEHIND.  

In comes the neurosurgeon.

"The tumor is malignant, it is on your motor strip which means it is on the portion of your brain that controls the movement of your face, arms and legs.  It is on the right side of your brain.  If we are to surgically remove this tumor, there is a good chance you will lose function of the entire left side of your body and this could be permanent."

"THIS COULD BE PERMANENT."

That was all I could handle.  I lost it.  I screamed.  I cried.  I sobbed.  I held on to Matt for dear life.  This was the worst news ever.  My life would never be the same.

I called Jess.  I cried.  She cried.  Hard.  We sobbed, we screamed.  I did the same thing again with Julie and again with my dad and again with Matt.

Why?

Why is this happening to me?  I cannot leave my babies.  My babies have to have a mom.  They HAVE to have a mom.

Matt and I decided almost immediately that I would have to get the tumor removed regardless of the risk involved.  A mom is still a mom even if she is in a wheelchair.  

I'm strong.  I'm a fighter.  I do not do anything half way.  If there is a chance I could walk again, I will do it.  

I WILL DO IT."




Today, Jen is going into surgery at 7:30 am to have the tumor removed. 

Here is where we need your help

We know the power of our amazing Annie & Isabel army. 

We are asking you to surround Jen with LOVE today. We want Jen to wake up to hundreds of comments on our Facebook page. We asked Jen's permission to share her incredible journey and she said the more healing thoughts and prayers sent her way, the better!  

Last time we asked you for this, we had thousands of likes on FB, shares, stories, and messages for 16 year old Carly when she woke up from open heart surgery. It was so special for Carly to wake up to so many encouraging messages. She felt so loved and we thank you for making that happen. 

So, let's do this like we know how! LIKE this post on our Facebook page and leave some words of encouragement to show Jen, her husband, and their beautiful children that there are many people thinking and praying for her today.


Thank you to Jen's friends Drew and Stephanie, who bought her our Susan gown. This is Jen Pre-Op in her Susan gown this morning and she looks pretty stylish!! You can tell she has a great spirit with that beautiful smile!!

  
Hugs to you Jen.  Thinking good thoughts for you today!!